Tag Archives: ParkinsonsUK

Pill Rolling (AKA Pea Rolling)

Sat on the sofa. Watching the tv. Calmly relaxing. Quite contentedly. Nothing on my mind. Feeling trouble free. Started to chill out. The best way to be. Tremor in my hand. It was plain to see. My thumb and finger, Like rolling a pea. A twitch in my hand. Then repeatedly, Up into my arm, Spasmodically. What the heck is

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Preventing the Unnecessary

“Disability is articulated as a struggle, an unnecessary burden that one must overcome to the soundtrack of a string crescendo.  But disabled lives are multi-faceted – brimming with personality, pride, ambition, love, empathy and wit.” – Sinead Burke.        Today my, largely, hidden disability became more visible.  Blatantly so, in fact.  Railings have been installed along the path

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Off the Rails?

“People who don’t see you every day have a hard time understanding how on some days–good days–you can run three miles, but can barely walk across the parking lot on other days,’ [my mom] said quietly.” ― Jennifer Starzec.      This weekend has involved thinking about the bad days.  Parkinson’s has a habit of giving you days when you question

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A Wet Makeover

“Behind the disability, we have a heart and a mind.” ― Matthew Kenslow.      With the progression of Parkinson’s Disease giving me a powerful kick or three, this year, I have deteriorated more than I had expected and certainly my new neurologist has said that Parkinson’s is now at ‘fast progression’.  Nothing exemplified this better than the number of times

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Nerves and Bananas

  “Always take a banana to a party.” ― Steven Moffat.       The event had been planned for a few months.  Having travelled for around four or five hours to what was a very heavily flooded part of England, we had all finally settled into our hotel on the previous night.  The hotel was comfortable.  As a team of

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The Miracle in a Box

“I often say now I don’t have any choice whether or not I have Parkinson’s, but surrounding that non-choice is a million other choices that I can make.” – Michael J. Fox.       It takes time to get used to living your life in three hour stages.  After my diagnosis of Parkinson’s, in 2017, I was initially given

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Who is in the Line Up?

 “Alone we can do so little; together we can do so much.” – Helen Keller.      I have made an artpiece to represent the ‘Admin Team’ of Parkinson’s Road support group in the United Kingdom, myself included, who are a team of volunteers who freely give our time to support others with Parkinson’s and their loved ones and caregivers. 

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The Facial Art Mystery

“The job of the artist is always to deepen the mystery.”  – Francis Bacon.       One of the interesting things about regularly practicing art, is that you start to develop a style of your own.  I have taken to working on portraits.  This has become something of a fascination to me, for I have a condition called Prosopagnosia;

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