Tag Archives: Parkinsons Treatment

Pill Rolling (AKA Pea Rolling)

Sat on the sofa. Watching the tv. Calmly relaxing. Quite contentedly. Nothing on my mind. Feeling trouble free. Started to chill out. The best way to be. Tremor in my hand. It was plain to see. My thumb and finger, Like rolling a pea. A twitch in my hand. Then repeatedly, Up into my arm, Spasmodically. What the heck is

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Preventing the Unnecessary

“Disability is articulated as a struggle, an unnecessary burden that one must overcome to the soundtrack of a string crescendo.  But disabled lives are multi-faceted – brimming with personality, pride, ambition, love, empathy and wit.” – Sinead Burke.        Today my, largely, hidden disability became more visible.  Blatantly so, in fact.  Railings have been installed along the path

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Off the Rails?

“People who don’t see you every day have a hard time understanding how on some days–good days–you can run three miles, but can barely walk across the parking lot on other days,’ [my mom] said quietly.” ― Jennifer Starzec.      This weekend has involved thinking about the bad days.  Parkinson’s has a habit of giving you days when you question

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A Wet Makeover

“Behind the disability, we have a heart and a mind.” ― Matthew Kenslow.      With the progression of Parkinson’s Disease giving me a powerful kick or three, this year, I have deteriorated more than I had expected and certainly my new neurologist has said that Parkinson’s is now at ‘fast progression’.  Nothing exemplified this better than the number of times

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Nerves and Bananas

  “Always take a banana to a party.” ― Steven Moffat.       The event had been planned for a few months.  Having travelled for around four or five hours to what was a very heavily flooded part of England, we had all finally settled into our hotel on the previous night.  The hotel was comfortable.  As a team of

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The Miracle in a Box

“I often say now I don’t have any choice whether or not I have Parkinson’s, but surrounding that non-choice is a million other choices that I can make.” – Michael J. Fox.       It takes time to get used to living your life in three hour stages.  After my diagnosis of Parkinson’s, in 2017, I was initially given

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A Rude Awakening

  “Life is a series of natural and spontaneous changes. Don’t resist them; that only creates sorrow. Let reality be reality. Let things flow naturally forward in whatever way they like.” ― Lao Tzu.      Have you had reason to visit hospital recently?  Perhaps for a one-off treatment, for something that requires some short- medium term care or, maybe like

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A Patient’s Perspective

“The world is a tragedy to those who feel, but a comedy to those who think.” ― Horace Walpole.      Today, I am thinking of perspective.  I will be attending my latest six-monthly neurology review.  This is to assess how Parkinson’s disease is progressing and to review medication.   It is an opportunity for my neurologist and I to explore how

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Brendan Quinn

“The car park and my cafe were under water!  I felt almost broken…..I could barely go on….My dyskinesia and tremor were off the scale.” Brendan Quinn.  2019.     Brendan Quinn was thirty-five years old when he received what he called “…the shocking diagnosis of Young Onset Parkinson’s.”  I was to interview this inspiring thirty-eight year old, from Flintham in

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When Things Change

    My next appointment with my neurologist, is towards the end of this month.  This is where I meet for what is a review, roughly every six months, to explore how Parkinson’s is being experienced by me and to assess the progress of the disease.  My medication is reviewed and I have the opportunity to ask questions; of which

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