Preventing the Unnecessary


     Today my, largely, hidden disability became more visible.  Railings have been installed along the path from our driveway, to our front door.  This is to cater for my difficulty with walking which, on the worst days, can be challenging.  I generally manage well using my walking stick and, on the best of days, … Continue reading Preventing the Unnecessary

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Off the Rails?


“People who don’t see you every day have a hard time understanding how on some days–good days–you can run three miles, but can barely walk across the parking lot on other days,’ [my mom] said quietly.” ― Jennifer Starzec.      This weekend has involved thinking about the bad days.  Parkinson’s has a habit of giving … Continue reading Off the Rails?

Crack the Poetic Code


Dot Dash Dot Dot, Dot Dot Dash, Dash Dot Dash Dot, Dot Dot, Dash Dot Dot / Dash Dot Dot, Dot Dash Dot, Dot, Dot Dash, Dash Dash, Dot Dot Dot / Dash, Dot Dot Dot Dot, Dot Dash, Dash / Dot Dash , Dot Dash Dash Dot, Dot Dash Dash Dot, Dot, Dot Dash, … Continue reading Crack the Poetic Code

A Wet Makeover


“Behind the disability, we have a heart and a mind.” ― Matthew Kenslow.      With the progression of Parkinson’s Disease giving me a powerful kick or three, this year, I have deteriorated more than I had expected and certainly my new neurologist has said that Parkinson’s is now at ‘fast progression’.  Nothing exemplified this better … Continue reading A Wet Makeover

Nerves and Bananas


  “Always take a banana to a party.” ― Steven Moffat.       The event had been planned for a few months.  Having travelled for around four or five hours to what was a very heavily flooded part of England, we had all finally settled into our hotel on the previous night.  The hotel was … Continue reading Nerves and Bananas

The Miracle in a Box


“I often say now I don’t have any choice whether or not I have Parkinson’s, but surrounding that non-choice is a million other choices that I can make.” – Michael J. Fox.       It takes time to get used to living your life in three hour stages.  After my diagnosis of Parkinson’s, in … Continue reading The Miracle in a Box